The Butterfly Family Fund
- P.O. Box 96 Smartsville, Ca 95977
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BFF Sticker
We hope this sticker is met with hope, inspiration and empowerment. EB can certainly try, but it's not messing with our families! Show your support in the most carefree of ways, and get people talking! These words from a mother's mouth are the fuel to make things right and to bring the most amount of joy possible to what is often a dark world. It's about time we all know about EB, and we're starting with one sticker at a time!
100% of pre-sale orders benefit the family and mama who inspired this to happen.
This version of the sticker has a matte finish. Dimensions: 4 in. x 1.7 in. Die cut. Price includes shipping.
Thank you for your support and for helping EB be better.
$6.00About
At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. We provide resources, education, and community to help navigate life with EB through positivity, resilience, hope, connection and compassion.
Our mission is to create a nurturing space where caregivers avoid burnout and families thrive. We hope to help navigate the delicate world of EB where both caregivers and their families can not only find balance and wellness, but also experience as much joy this world can offer.
Epidermolysis Bullosa is often referred to as "the worst disease you've never heard of." With EB, any kind of bumping or friction, causes the skin to blister or shear off. This not only impacts the skin, but organs including the esophagus, mouth, eyes, trachea, and stomach. Children living with EB are often referred to as butterfly children because their skin is as fragile as butterfly wings.Something as simple as eating causes excruciating pain, often leading to the inability of enjoying the simple life pleasure of eating a meal. This is one, of many life pleasures that are ripped away from someone living with EB.
Parents often learn about EB the day their child is born. Then and there, EB becomes their life. Although those living with EB may appear fragile, they are by far the strongest, most resilient, courageous, beautiful souls you will ever meet. We are honored to know them and honored to be part of their journey. We know that it will be because of a kind, compassionate and supportive community that we get these families what they truly deserve and we are so grateful to those that make it happen.
Our Leadership Team
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Our Board of Directors
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The Butterfly Family Fund
At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. We provide resources, education, and community to help navigate life with EB through positivity, resilience, hope, connection and compassion.
Our mission is to create a nurturing space where caregivers avoid burnout and families thrive. We hope to help navigate the delicate world of EB where both caregivers and their families can not only find balance and wellness, but also experience as much joy this world can offer.
Epidermolysis Bullosa is often referred to as "the worst disease you've never heard of." With EB, any kind of bumping or friction, causes the skin to blister or shear off. This not only impacts the skin, but organs including the esophagus, mouth, eyes, trachea, and stomach. Children living with EB are often referred to as butterfly children because their skin is as fragile as butterfly wings.Something as simple as eating causes excruciating pain, often leading to the inability of enjoying the simple life pleasure of eating a meal. This is one, of many life pleasures that are ripped away from someone living with EB.
Parents often learn about EB the day their child is born. Then and there, EB becomes their life. Although those living with EB may appear fragile, they are by far the strongest, most resilient, courageous, beautiful souls you will ever meet. We are honored to know them and honored to be part of their journey. We know that it will be because of a kind, compassionate and supportive community that we get these families what they truly deserve and we are so grateful to those that make it happen.
Our Campaign Goal:
Business Information
Booster Club EIN Number: Available to Leadership
Booster Club
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Supported Organization: Non Profit Business
Booster Club Focus
Community/Activism
Supported Organization: Non Profit Business