The Butterfly Family Fund
- P.O. Box 96 Smartsville, Ca 95977
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Bunco Ticket
Enjoy a night with good snacks, good people and good ol' fashioned Bunco fun, all while helping make a great difference in the lives of those that deserve it most!
BFF Bunco Night will be held on Wednesday, October 2nd from 5:30-8:30 at Twelve 28 Kitchen in Penn Valley. There are prizes to be won and additional games to participate in! Twelve 28 will be putting out the snacks and The Butterfly Family Fund will be forever grateful for your presence.
Every penny raised will go directly towards helping families living with Epidermolysis Bullosa (EB). EB is known as the worst disease you have never heard of, and for good reason. Enjoy a night honoring some spectacular people while having the most fun Penn Valley can have! We have a very special guest that we can't wait for you all to meet! Get ready for a life changing night!
About
At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. We provide resources, education, and community to help navigate life with EB through positivity, resilience, hope, connection and compassion.
Our mission is to create a nurturing space where caregivers avoid burnout and families thrive. We hope to help navigate the delicate world of EB where both caregivers and their families can not only find balance and wellness, but also experience as much joy this world can offer.
Epidermolysis Bullosa is often referred to as "the worst disease you've never heard of." With EB, any kind of bumping or friction, causes the skin to blister or shear off. This not only impacts the skin, but organs including the esophagus, mouth, eyes, trachea, and stomach. Children living with EB are often referred to as butterfly children because their skin is as fragile as butterfly wings.Something as simple as eating causes excruciating pain, often leading to the inability of enjoying the simple life pleasure of eating a meal. This is one, of many life pleasures that are ripped away from someone living with EB.
Parents often learn about EB the day their child is born. Then and there, EB becomes their life. Although those living with EB may appear fragile, they are by far the strongest, most resilient, courageous, beautiful souls you will ever meet. We are honored to know them and honored to be part of their journey. We know that it will be because of a kind, compassionate and supportive community that we get these families what they truly deserve and we are so grateful to those that make it happen.
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The Butterfly Family Fund
At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. We provide resources, education, and community to help navigate life with EB through positivity, resilience, hope, connection and compassion.
Our mission is to create a nurturing space where caregivers avoid burnout and families thrive. We hope to help navigate the delicate world of EB where both caregivers and their families can not only find balance and wellness, but also experience as much joy this world can offer.
Epidermolysis Bullosa is often referred to as "the worst disease you've never heard of." With EB, any kind of bumping or friction, causes the skin to blister or shear off. This not only impacts the skin, but organs including the esophagus, mouth, eyes, trachea, and stomach. Children living with EB are often referred to as butterfly children because their skin is as fragile as butterfly wings.Something as simple as eating causes excruciating pain, often leading to the inability of enjoying the simple life pleasure of eating a meal. This is one, of many life pleasures that are ripped away from someone living with EB.
Parents often learn about EB the day their child is born. Then and there, EB becomes their life. Although those living with EB may appear fragile, they are by far the strongest, most resilient, courageous, beautiful souls you will ever meet. We are honored to know them and honored to be part of their journey. We know that it will be because of a kind, compassionate and supportive community that we get these families what they truly deserve and we are so grateful to those that make it happen.
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Supported Organization: Non Profit Business
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Community/Activism
Supported Organization: Non Profit Business