Thank you so very much for being here! 

We are on the hunt for the one million dollar donation and we appreciate any help you can offer in helping us find it! We know it will take something extra special to find the "golden butterfly" and we also know how much good will come of it! We have a lot to accomplish and for some of the most deserving families! Can you help us find the one million dollar donor? Can you help us find a one dollar donor? It could take 1000 people donating $1000, one million people donating $1 or one person donating one million dollars. Every penny will make a difference in the lives of those living with Epidermolysis Bullosa. All donations are met with the most amount of gratitude from us, our families, their families, and the communities in which all of these families live.

Your donation will support projects like the Compassion Conservatory, a retreat for caregivers to gain tools and resources to avoid burnout and find wellness within their core; and Band of Butterflies, a retreat similar to the Compassion Conservatory, but for the guys! Other retreats include Glow with Grief, a place to find light in loss after facing a parent’s worst nightmare. Why stop there when we could host the biggest gathering of them all and get everyone together! The "BFF Meet Up" will be an opportunity for all families living with EB to get together and just be together, surrounded by wellness providers and compassionate people who are dedicated to making a difference in the lives of those who deserve so much. 

You being here means so much to us. Thanks for being you.